A mother's love is instinctual, unconditional, and forever.
~~unknown
it totally mystifies me why the insurance company suddenly decides you can't take a drug any longer. when you have taken it for months..
that is what happened to our oldest daughter Sarah
~~unknown
it totally mystifies me why the insurance company suddenly decides you can't take a drug any longer. when you have taken it for months..
that is what happened to our oldest daughter Sarah
she takes cellcept for her scleroderma
this drug is traditionally used for transplant patients. and i guess that medicare has decided that it should be used for exactly that, transplant patients. that it helps people with an auto immune disease live a better quality life makes no difference to the "powers that be." they just see the long term DOLLARS involved.
Sarah will probably now have to return to
using oxygen 24 hours a day. to not being able to get out of bed most the time. the dr has already told the insurance how much this has changed the quality of her life. how much she needs this drug but it seems they don't really care very much.
she would pay for it on her own. and continue to take it, but the drug company has put a price on it that is more money than her social security each month it alone is around about
one thousand a month for the dosage she needs. not including any other medications she needs during the month.
her best bet.. try to get the drug company to help, but they usually don't if you have insurance..funny when the insurance won't pay!
the dr will discuss with her the next step. the next drug that may help her. maybe something else will work as well as this one drug did.
Monday, February 23, 2009 8:17:00 PM
Oh, I hate to hear this. Why mess with something when it is obviously working for her! Very frustrating.
Monday, February 23, 2009 8:27:00 PM
Gosh, I didn't know Sarah is your daughter! This kind of thing makes me absolutely nuts! My son takes thousands of dollars a month of drugs for his mental illness. Every month, when we were on Medi-cal, they would decided not to cover this med or that med. It was so awful. This, though, is worse! Crossing my fingers and hoping and praying!
Monday, February 23, 2009 9:09:00 PM
This is infuriating. I am so sad to hear this for Sarah (and for mom!!!) DONT GIVE UP fighting with the insurance company, go to the next level and the next level. BEST OF LUCK!
Monday, February 23, 2009 9:11:00 PM
usually they will ok it with a doctor over-ride, but that is terrible that they won't listen...I'll be praying for you! I hope it works out for Sarah...love the picture of her!
Tuesday, February 24, 2009 10:20:00 AM
Companies like that just don't have the heart they should. I feel terrible for your daughter and hope her doctor can find something that will increase her lifes enjoyment and yet is still covered.
Tuesday, February 24, 2009 10:37:00 AM
I am with Stormy...I would keep pushing. I am finding that we have to be advocates for those we love because although their best interests are supposed to be represented, they usually are not. Keep fighting!!!
Tuesday, February 24, 2009 11:39:00 AM
That is horrible!! I'm so sorry!!
Tuesday, February 24, 2009 1:20:00 PM
Arrgggghhh! I feel for her!! Why do they put us in such hard places... praying for her..